Saturday, March 18, 2006

PANDAS and AUTISM

I think i have finally figured out why Daniel has screamed....

latent strep...... PANDAS

No, not the furry bear like creatures that exsist or the miriad of collectables i have but the pediatric autoimmune neuropsychiatric disorders associated with streptococcus

And the more i read the more i am convinced that many children harbor such strep or other related virus's and bacteria that cause autoimmune problems that might be responsible for some if not all of their autistic tendancies.... i intend to study this further.

I am going to try to convince his doctor to do a 48 hour strep test on agar (one way to dx it, the other is D8/D17 immunologic marker) , and might have an answer, that is if i havent already killed the strep that was in his body.

After following a pretty strict protocol i think the step is gone, the screaming is GONE , completely.

I urge parents of children who have ongoing or sudden behaviors, whose children have a DX or Autism, ADD, ADHD, Bipolar, OCD, anxiety, aberrant behavior, and resulting tantrums, compulsions and fixations, rituals, tic-like eye stims or movements, etc. to consider this very real CAUSE and problem ....and best of all its treatable!

According to various PANDAS websites, and I found the documented research, and Dr. Hollander's abstract on "B Lymphocyte Antigen D8/17 and Repetitive Behaviors in Autism, from the American Journal of Psychiatry , Feb. 1999, that clearly indicated a propensity or susceptibility for PANDAS in Autistic children.

The emerging evidence is very clear, the so called psychiatric or mental illness problems can be biological....and treatable, even cured.

Perhaps the evidence is almost here to convince others the need for biomedical intervention is mandatory for the recovery of autism.....that is, for those that want to cure their children.

Cheryl

Thursday, March 09, 2006

1000 Cases of Recovery

The Autism Research Institute knows of 1000 cases of recovery.

http://www.danconference.com/springLetter.htm

Maybe someday Recovery for all will be more than a dream.

Studies ....http://www.autismndi.com/news/display.asp?content=RESOURCES&shownews=20040721154152

I (and many others) have long felt that there were many types or subsets of autism and now The M.I.N.D. Instistue is going to determine these subsets and map out the best form of treatments, which will be a great thing to do. Perhaps then people will be convinced of the possibilities of biomed intervention.....


RESEARCHM.I.N.D. Institute Launches Largest Biomedical Assessment of ASD
ChildrenAutism Phenome Project aims to redefine autism by identifying
distinct subtypes.
Multidisciplinary teams of physicians and scientists at the Universityof California, Davis, M.I.N.D. Institute have launched the nation's mostcomprehensive assessment of children
with autism to detect the biologicaland behavioral patterns that define subtypes
of the disorder.
Called the Autism Phenome Project,
the large-scale, longitudinal studywill enroll 1,800 children -- 900
with autism, 450 with developmental delayand 450 who are typically developing --
who will undergo a thorough medicalevaluation in addition to systematic analyses
of their immune systems, brainstructures and functions, genetics, environmental
exposures and bloodproteins. Children will be 2 to 4 years old when they begin
participating inthe study, and their development will continue to be evaluated
over thecourse of several years. The first phase of the research is funded by
the UCDavis M.I.N.D. Institute and philanthropic donations.
"Children with autism clearly are not all the same,"
said David G.Amaral, research director of the UC Davis M.I.N.D.
Institute and co-directorof the project. "The tremendous variation leads us to
believe that autism isa group of disorders rather than a single disorder --
several autisms versusone autism. More Info:
www.mindinstitute.org.

Wednesday, March 08, 2006

Warmy ....

The other night I took Daniel's blanket out of the dryer, like i normally do and wrapped it around him and to my surprize my special boy said "warmy"... while most parents of 12 years olds might not think that is a big deal, for my son it is a major accomplishment. I typically say warmy blanket as i wrap my son in his cherished warm blanket but this time he delighted me expressing his own happiness at the warmth of his blanket with a word....

Words have not come easy for this boy in his 12 years. He spoke a few when he was little but for 10 years there were no words until December, until after a month of biomedical intervention.

He has been on everything I think he needs for about a month now and the change is very dramatic. Not just words but interactions are new and "normal", learning is fun and less difficult. I am grateful for all the wonderful progress my boy is showing and I hope it continues ...

As far as school is concerned i doubt he will be going back and altho i am sad about that I have gotten over the constant crying. Now I am more angry than anything else and so now I intend to vent my anger toward a greater goal.

I intend to file a civil action in Federal Court and hopefully get the DP decision reversed. In doing so my son will be able to be a normal kid again, able to attend school just as his peers do. ANd if I am successful perhaps other children and their parents wont have to be at the mercy of school personell that think of themselves rather than the needs of a child....

I may have lost the battle, but the war continues and hopefully I will win the next battle that wins the war....

SO it begins

Cheryl

Friday, March 03, 2006

I failed him

I lost the Due Process Hearing...

Ironically mostly because i trained the aide therefore she was trained , doesnt matter that tho i am qualified in the judges eyes to train i am not qualified to make a decision that she isnt capable of being trained.

SO many things not even taken into account. It was like the judge was predisposed to find for the district and nothing else mattered. Didnt matter that the woman they hired to be my son's aide LIED under oath.DOESNT MATTER that she committed PERJURY ! Didnt matter that the school hired someone unqualified when 2 were available that were qualified, it didnt matter what my son needed at all ....

And so now he will not be going to school even longer.... he wont get to be with kids, he will continue to stay home , i cannot possibly send him back to that woman that is capable of lying, what else has she lied about?

Is that why he looks at her with fear ?

How could i possibly send him back to that woman who doesnt care AT ALL if SHE is the reason my son isnt in school... what kind of evil person does that?

She knows if she quit my son would be in school ....she knows she is the reason he is not in school, she cares more about HERSELF having a JOB than a CHILD !!!!!!!!!!! How could any parent leave a child who cant speak for himself with someone so evil ? I know i cant...

I am so upset right now i havent stopped crying since i read the decision in the post office parking lot. Its so unjust and its against my child. My special boy and These people do not care at all about a BOY .......................how evil is that ?

All the recent occurances about the CDC cover ups , throw away children.... so many schools not caring about children, just throw them away ... IDEA was suppose to change that and and even now in 2006 disabled children are still throw away nothings ....given psuedo rights , meaning nothing.

I am torn between letting it go, just keeping him home, not having to put myself thru this anymore, i guess thats selfish....selfish that i just dont want to fight anymore i just dont want to cry anymore i just dont want to deal with people who dont care about my son anymore it hurts so much that they do this to him and me...and part of me knows i could just walk away ... leave them all behind, say goodbye to the public school system. And part of me knows that doing so means my son never gets to sit with other children, to run with other children, to laugh with other children ... he will be destined to a life with just his mom, much sooner than he should have to be...

Then again i bet i wake up tomorrow, dry my tears and prepare for battle. I'm fairly stubborn when it comes to protecting my son's right to go to school and actually learn something. So tomorrow is another day and while they may have won the battle i will Prepare to win the war.....hopefully i can make a judge see this thru the eyes of a boy......
Cheryl

Wednesday, March 01, 2006

Nasal MB12

I got the MB12 today ! And so far it hasnt done anything. Course that could be cause its been 5 minutes since i sprayed it ;-)

Hopefully i wont have to sit on him to do the next one ! lol

I hope he responds to it, he may or may not but it is something i felt i should try and so here we go ! Finally !

Cheryl

Tuesday, February 21, 2006

22 days more days...

I hadnt realized I havent posted since the day before the hearing. The hearing was such an emotional rollercoaster i am just now starting to recover and yet the real turmoil hasnt ended. Just 22 more days till i find out if Daniel will be going back to school.

I keep worrying that i wasnt good enough, keep worrying i forgot to present everything that needed to be presented, knowing i did forget some things, hoping it wont matter.

Today i kept thinking if i lose...

If i lose he wont be going back, if i lose he will no longer have what other kids get to experience, if i lose he will not be with kids again for a very long time.

He cant possibly go back if i lose.

The hearing was a few surprizes. Nice surprizes in one aspect that someone was more honest than i expected them to be, bad surprize from one that i trusted and found that i couldnt. And even more confirmation coming with knowing the person they have assigned to my son is capable of lying under oath , confirming my fears of the things going on that i only speculated to and feared previously...

And knowing he cant possibly go back and be put in that situation again. I keep wondering how someone can care more about themselves than a boy, but the hearing answered that question, the needs of a boy arent important to most....

I am scared, scared he wont ever get to be a boy in school again, surrounded by other children , no longer any opportunity to just have what normal kids have.

Ive thought about moving if i lose, but I cant move for at least a year or so...I cant leave this town with my oldests' senior year coming up, I cant do that to him..... so Daniel would remain at home till then. Which when I am being rational and less sad feel it might not be so very bad, he is enjoying being home, he is learning and actually seems rather happy.
Perhaps its my own feeling that he is missing something by not going to school, my own NTness that makes his not being in school sad only for me. He sure doesnt seem to mind at all...

just 22 days till his future is decided, in the hands of a judge now, just waiting .... and me not feeling i was good enough to save him from being institutionalized at 12, in his own home.
:-((

Monday, February 06, 2006

Due Process Hearing Tomorrow

Tomorrow is the day …

Tomorrow is the Due Process Hearing that will decide if Daniel ever goes back to school.

Its been 56 days since he went to school and tho he seems to be loving it at home, I am so tired I wonder how much longer I can go on. I have barely posted in so long cause I am just obsessive about preparing for this hearing so I don’t lose. And I am so scared I am going to lose !
Which means Daniel loses !
Home schooling is actually going well, he is learning so much, doing so well.... so there is that guilt factor for wanting to send him back…. But I think he needs the kids and being away from the house more, away from mom. And I need a break. I wasn’t cut out for this. Its possible it might be different if I weren’t involved in preparing for this hearing but I doubt it. I like my time alone.

I WANT TO BE ALONE !

And so I am scared.

Everything rides on how well I can do tomorrow, and I am scared cause I know they are going to lie. I have a feeling they will all have their stories (lies) straight and they will lie. Everything rides on how well I can do tomorrow, and I am scared cause I know they are going to lie. I have a feeling they will all have their stories (lies) straight and they will lie.

IF they are honest I will win, I know it, and I am sure they know it, too.
So they will lie, They will lie even tho its lying against a child …. They will lie to protect themselves and forget they are lying about a child’s life.

I am so very very scared …I’ve said it so many times but I hate this place, I hate this school district, I just want so very much to go away …

Please if anyone has any good vibes to spare I need some good thoughts at 8 am tomorrow ….please prey for me to be strong so I can win and my son can go back to school…
Cheryl